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A Celiac's Guide To Surviving A Weekend Away With Friends 

5/24/2015

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Weekend trips with friends are supposed to be fun little escapes, but unfortunately for those with celiac disease, these trips can be full of anxiety about how you are going to navigate eating gluten free with a group. I'm not going to pretend that there is some magic formula for surviving a weekend away with friends, but after having done many (some very stressful) weekends myself, I have learned some ways to make them survivable. Here are my best tips for navigating gluten free eating on trips where you may not have much control over the kitchen.

1. If at all possible, be the one to do the grocery shopping --Whether you are staying at a hotel, or somewhere that has a kitchen, if you can be the one to grocery shop for whatever food your group gets, do it. If you are the one shopping, then you can pick up things for yourself that you know will be safe for you to eat — Things that DO NOT require kitchen tools. Remember, things like the toaster, pots, pans, etc will most like be used for gluten, so pick up things that can be cooked in a microwave or oven. I suggest things like Amy's gluten free burritos, frozen pizza (be sure and cook the pizza on a lot of tin foil) and frozen gluten free entrees like lasagna. While these may not be the healthiest choices, at least you can cook them without a bunch of added stress.

2. Have the right kitchen tools — paper towel and tin foil will be your best friend. Again, if you are sharing a kitchen, you are going to want a lot of paper towel and tin foil on hand. Both of these kitchen staples will ensure that your food can stay un cross contaminated. Do not use the common kitchen dish towel — odds are it will be sure to wipe up all sorts of gluten.

3. Keep your things separate — I went on a bachelorette weekend recently with 15 other ladies and the kitchen was a gluten nightmare. When I got to the house, I found a kitchen cupboard and stashed all my gluten free things in there. It was very helpful to have my own little place in the kitchen with extra crackers, snacks, tin foil, etc.

4. Wash your hands ... a lot -- This is an important one — With all the gluten circulating around, you never know what surfaces are clean. Be sure and wash your hands a lot when you are sharing a common kitchen with gluten.

5. Label your food, and then hide it — While away recently, I did this with a container of cream cheese. I put a big 'gluten free only' label on it, and then I hid it in the depths of the fridge. I don't think anyone even saw it except for me that weekend. If you have refrigerated items like cream cheese or hummus, then label them clearly. Most people are not used to accommodating a celiac, and just don't know that they can't share your food. Labeling and hiding are your two best bets to reminding people that your food needs to stay separate.

6. Stash some emergency food in your room / suitcase -- Throw a Larabar or KIND bar in your room for good measure. Just in case you find yourself starving, and you have run out of options.

7. For any shared condiments, try to get squeeze bottles — Offer to be the one to buy the condiments, and then purchase everything in squeeze bottle form. This has made my life SO much easier on multiple occasions. Squeeze bottle ketchup, mayo, mustard, etc can be a lifesaver because they ensure no cross contamination.

8.
Remember that people usually have good intentions, but understanding celiac disease is hard — It can get very frustrating traveling with a group when people don't understand how hard / stressful it is to be gluten free. Remember though that most people don't have to understand this disease, and usually have good intentions. Try to up your level of tolerance for those who don't know what you go through.


Good luck!

— The Healthy Celiac
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Six Reasons Having Celiac Disease Has Been A Good Thing

5/7/2015

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I'm not going to go so far as to say I feel the need to celebrate the fact that I have celiac disease, but in honor of May being Celiac Disease Awareness Month, I think it is worth looking at the bright side of this disease. There are an infinite number of reasons that having celiac disease sucks — autoimmune issues, random symptoms, no cure, etc. BUT, there are some positive ways this disease has impacted me, and there is no better time than Celiac Disease Awareness Month to look at them.

1. Celiac disease taught me to carefully evaluate everything I eat, and to make healthier choices. I don't know about you, but once I got diagnosed with celiac disease and changed my diet I cut out an enormous amount of crap from my diet. Having celiac disease forced me to learn how to really evaluate the food I eat, and make healthier decisions about what I am putting in my body. Gluten free or not, I now evaluate and carefully consider everything I eat.

2. Celiac disease got me off a whole lot of pharmaceutical drugs. There is a definitely a place for antibiotics and other pharmaceuticals, but for me getting a celiac diagnosis freed me from a lot of unnecessary prescription drugs. According to the University of Chicago Celiac Disease Center, the average length of time it takes for a symptomatic person to be diagnosed with celiac disease in the US is four years. I spent three years undiagnosed, and those years were full of everything from antacids to antidepressants – all of which I did not need. Too many pharmaceutical drugs had left my body feeling more confused and ill than ever. Getting a celiac disease diagnosis was a welcome relief to me — I was no longer trying to fix a variety of symptoms with synthetic drugs.

3. Celiac disease gave me a much deeper compassion for those with chronic illness. I now know what it feels like to have absolutely zero control over my body. I understand what it feels like to feel trapped by an illness and unable to fix it, and I wouldn't wish it on anyone. Not only has celiac disease made me very thankful I am not battling a more severe and fatal illness, but I also have a lot of empathy for those who are dealing with chronic health challenges. There are many days I walk down the street feeling like absolute garbage, and look perfectly healthy on the outside. There are a lot of other people out there battling their own health issues, and I now have a much deeper compassion for them.

4. Celiac disease has taught me to be responsible for my own health care. I would be shocked to meet someone with celiac disease who hasn't had a handful of disappointing exchanges with health care professionals. I have learned that my health is in my own hands, and if I go to a doctor it is on me to take responsibility for my own health. I remember once being in a clinic getting a prescription for antibiotics and told the doctor I needed to ensure my medication was gluten free because I have celiac disease, to which he responded: "that is where you can't eat wheat right?". This exchange was only about a year ago — my first thought was, who the hell let this man practice medicine?  The point is, I can't expect a doctor to have all the answers  — It is up to me to ask the right questions, and ensure I feel comfortable, regardless of what health issue I am addressing.

5. Celiac disease has taught me how to be patient ... very, very patient. Most people with celiac disease pretty much have a PHD in patience. They most likely struggled though a diagnosis, then struggled through learning how to properly eat gluten free, had to address all their symptoms and residual health problems from this disease, and learn how to educate those around them.  Then there is the added bonus of all the times that a Celiac accidentally ingests gluten and has to endure the 1-5 weeks it takes for the body to heal. All of this ends up making for one very patient person. I didn't notice myself growing especially patient, but when I think about all the time I have spent 'waiting to feel better' I realize that I have actually become a master in the art of patience for things I can't control.

6. Celiac disease has taught me how to take initiative to educate myself. This disease does not come with a handbook — far from it. There are hundreds of potential celiac disease related symptoms, and literally no two people with celiac disease will have the same symptoms and experience. This disease has required hundreds of hours of reading online, asking questions, evaluating information and drawing my own conclusions. I have learned to apply these research and analytical skills to other areas of my life as well. I am much more competent and confident person when it comes to seeking out information and answers to problems. 

Have other ways that celiac disease has actually been a good thing in your life? Please share in the comments!

— The Healthy Celiac


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How To Answer When Someone Asks Questions About Celiac Disease

5/1/2015

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In honor of May being Celiac Disease Awareness Month, I thought it would be a good time to do a post about how to answer questions about celiac disease. Like every other celiac out there, I have been asked about thousand times 'what exactly is celiac disease?'or 'what happens when you eat gluten' — It took me a while to come up with short, succinct ways to answer these question without going into all the sorted details or blabbing on for a long time.

For a while it annoyed me to try and describe what celiac was like, but now I have short, rehearsed responses to these questions. I of course answer with what I am comfortable talking about, and discuss the symptoms that are specific to me. Every celiac is different, and may answer these questions differently!

When I get asked, 'what is celiac disease' I usually reply: It's an autoimmune disease, meaning when I eat gluten, my body doesn't know how to process it, and thinks it is a foreign antibody. Essentially, my body starts attacking itself in different ways — stomach pain, bloating, hair loss, nerve damage, etc.

When I get asked, 'what happens when you eat gluten' I usually reply:
About 20 minutes after I eat gluten I notice the effects. It starts with stomach pain and upset, and then in the days and weeks following, I have a variety of issues like: brain fog, exhaustion, hair loss, joint pain, weigh gain, etc.
Your body stops being able to absorb nutrients and that causes a whole host of problems in the body.

When I get asked, 'how do you get celiac disease?' I usually reply: It's a genetic condition, some people are born with it, while others carry the gene silently, until one day it 'kicks in'. A physically or emotionally dramatic event can set it off if you carry the gene, for me it was getting a parasite.

When I get asked, 'do you ever cheat and eat gluten?' I usually reply: No, definitely not. I was so sick for so long prior to my celiac diagnosis, I would never inflict that on myself voluntarily.

When I get asked, 'will a little bit of gluten really hurt you?' I usually reply: Yes, even a tiny bit sets my entire body off — it's like turning on a light switch, once it's on, it's on.

When I get asked 'you're cured as long as you don't eat gluten, right?' I usually reply: Eating a gluten free diet stops the symptoms, it doesn't cure the disease. Celiac disease is a chronic disease with no cure. There are a lot of residual health problems that are associated with celiac disease.

I hope these answers help some of you out there who find it frustrating to answer questions about celiac disease! The more people who know about and understand this disease, the better!

— The Healthy Celiac



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